25 December, 2007

"You have chosen not to be admitted; therefore you should resume your outpatient medications. Good luck with your migraine and merry christmas."

I didn't have the energy to be angry. This was the third ER visit well within a week, and no one seemed willing to do what usually works for me--giving me 8-10mg of IV dilaudid in reasonably short order (less than an hour) and sending me home to sleep. They spaced the dilaudid out, or wouldn't give that much, or just something.

So a 9 headache would go down to a 7, I'd go home, go to sleep, and wake up with an 8.

I didn't want to spend all of Christmas eve in the ER, but I was trying to avoid going back to work on Boxing Day looking like the recently dead.

So much for that plan. They offered to admit me and give me 2mg every 8 hours. And then they treated it like a bargaining table. And brought DHE infusions up again, despite them never having worked. I don't get it.

I have no idea what to do next. I've sent an email to my GP (out of office until the 3rd) asking for a referral outside of UCLA, to Cedars-Sinai, and left a voice message with my migraine specialist asking him why all the ER stuff went down how it did--he was paged for two of the visits, after all.

If the meds I used to get will kill me, someone needs to tell me. If this level of pain is something I'm supposed to keep functioning with, someone needs to look me in the eyes and say that to me.

3 comments:

Jonquil said...

Swell. "We won't follow your doctor's orders. Therefore, unless we admit you and do something that also doesn't follow your doctor's orders, we will do nothing."

Motherfuckers.

I'm so sorry. And full of rage for you. And wishing somebody could be made to feel your pain before they judged you unworthy of treatment.

Have you tried and failed Lyrica yet? I forget.

LA MIGRAINEUSE said...

No Lyrica--news of your success came after my last appointment with my specialist. I am going to have to talk to him about this round of ER failure, so I will try and ask him then.

Jonquil said...

It's way off-label and experimental, but at this point what isn't?